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FMD Data Strategy and Capability Committee

Breadcrumb

  1. FMD Data Strategy and Capability Committee
  2. Accessing Data infrastructure, tools, policies and training
  3. Data Resources

Data Resources

FMD Data Asset Registry

Data Asset Registry Toolkit (DART)

  • DART is the  FMD Data Asset registry Toolkit, which is used to document and log study datasets and line of business information. This is a requirement for ISO 27001:2022, Data Protection Act (GDPR), Data Security & Protection Toolkit (DSPT), and supports grant funding  application data management
  • DART is intended to create a holistic view of the data held across our estate and is used for classification, identification, and management of secure digital assets.
  • DART provides effective management of the data retention and access control for all data catalogued onto the portal.
  • DART is compliant with the NHS data management requirements and supports the Information Asset Owner accountability.

Click here for more information on DART

Clinical Practice Research Datalink (CPRD)

CPRD is a research-ready dataset of UK primary care health records, with available linkage to other health-related data. QMUL has an active CPRD licence

Click here for more information on CPRD

Compass

Compass is a database of de-identified primary care data, curated by CEG. It holds an extract of North East London data from the Discovery Data Service. If you would like to use Compass data for a research project, this must be done in collaboration with CEG

Click here for more information on Compass. 

QResearch

QResearch is a large anonymised national database of GP records linked to hospital, deaths, maternity, prescribing, and COVID-19 data. It is available for funded research projects

Click here for more information on QResearch

Genes & Health 

Genes & Health is the world’s largest community-based study of genetics and health in British Bangladeshis and British Pakistanis; communities that are under-represented in clinical trials, biobanks and cohorts. The study includes genetics, NHS health records, and volunteer recall for further medical research studies. Available datasets on all volunteers (>70,000) include: GSA chip genotyping and TOPMed-r3 imputation; high depth exome sequencing; multisource NHS health record linkage (including primary care, secondary care including pathology and radiology, and national NHS Digital datasets)

Click here for more information on Genes & Health 

 

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